Remy Update and a word from Rochto

Briefly regarding Remington, he’s given us a couple of scares but the prognosis is still for a treatable immune mediated disease.  This afternoon he had a transfusion for a lagging red blood cell count, which in many ways is expected and not the bad news that it seems.  Clinically apart from a brief infection that he reacted badly to, he’s bright eyed, alert, and issues like blood in his urine are beginning to clear up.  We simply await his body to react to the treatment and begin creating platelets to bring him home for treatment.

Alongside that we’ve received some comments about putting Remington down or spending so much on his treatment that Rochelle I think addressed best on her facebook page.  Here are her words:

I’d like to put forth the issue of putting Remy down at this point – It’s been brought up to us multiple times from friends and family. I understand their concern, but let me tell you…we have been through this. We will NOT let our pets suffer because of our own selfish reasons of keeping them alive. There are several factors: financial, quality of life, and age.

We are blessed to be in a position that ER expenses are not an issue. Secondly, Remy is not at a stage of tremendous suffering (yes, his body has been through a lot, but he has given us NO indication that he is in severe pain or suffering). Thirdly, he is 1 1/2 years old.

Prognosis is good for the most part – Auto Immune-Mediated Disease is treatable. We just have to get him to a point where he responds to medication. If, for any reason, he is not respondent to treatment…then yes, we will visit the option of letting him go. We are not there yet, and it’s way too early to tell (he’s only been through this one week). What we ask is that our friends and family respect that Remy and we will be the best judge of when it’s time. In the meantime, we appreciate continued support, prayers, and positive thoughts.

We’ve received tremendous support from friends and family.  From fans of the Major Nelson Podcast, to my Twitter followers, to the gang at Xbox (especially my enforcers), to friends at Harmonix and fellow w00tstock and jococruise performers. Remy’s not out of the woods yet so we still need good thoughts, but thank you all so very very much.

Update on Remington

[EDIT:  Update!  Bone marrow work came in early and normal, we can now rule out almost all of the potential cancers.  Signs point to an immune mediated disease.]

 

Many of our friends have been gone this weekend and have been somewhat blindsided, as were we, by what is happening to Remington.  Rochelle and I have both taken to twitter and facebook to keep people updated but figured we were doing it a bit to much with each twist and turn, so here’s a quick update.

TL;DR: His blood work still shows he’s very sick, but not in any immediate danger and he’s alert and playful.

The problem is that when we had the vet run a standard blood check on him when he woke up Friday morning lethargic, he showed few platelets, a low red blood cell count, and an out of wack white blood cell count as well.  Our local vet apparently has some experience with these types of results and told us to get him to a hospital immediately.  There was a very real chance he could die.

Remy was miserable yesterday as he had to go through a battery of tests. Today while his blood panel wasn’t what we wanted, it was at least better than yesterday as the hospital has begun an autoimmune regimen on him.  We went to see him tonight and were both surprised and relieved at how much better he was today than yesterday.  There was a spring in his step and he played his usual pushy self demanding attention from us.  Here’s a picture of Rochelle with him just a couple of hours ago:

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Right now due to the holiday weekend we’re in a wait and see mode.  He won’t be able to come home for a couple of days, as his platelet count needs to reach a certain level before he can safely leave constant monitoring.  His bone marrow test results probably won’t come back until Tuesday.  At this point there are three or four possible things it can be ranging from autoimmune to cancer. None of them good but not all of them are horrible.  He’s only 18 months old so he has youth and otherwise strong health going for him, giving us many options depending on what the underlying cause of the problem is.

I’ve been a wreck all day as has Rochelle, but seeing Remy with his goofy grin and wagging his tail at least made us feel a lot better.  Our next update will be at 1pm or so Pacific time tomorrow as we get a new blood panel for him.  We expect, given his current treatment of steroids and antibiotics, to see an increase in platelets but how much we have no idea.

I just can’t thank people enough for the well wishes.

A Twitter of Echoes, Part 2.

It’s going to be a long night for me.

Over the past 18 months our new dog Remington Martin has, as all new dogs do, wormed his way into our hearts with his unique personality.

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This morning he was slightly lethargic. With a dog so young, Rochelle and I were a bit dismissive at first, assuming he’d just gotten into something in the back yard.  But his slow consumption of his food this morning (he’s normally Speed Racer at eating) and his inability to drink any water led us to the vet for a routine check and blood test.

Fast forward 11 hours and he’s in the hospital on an IV for a probable Auto-immune disorder. He’s fine as I write this, out of any immediate danger.  But my panic throughout the day as the prognosis grew worse and worse once again showed the value of social media.

From the first tweet that he was in trouble hundreds of messages poured out saying people were thinking of him and us, praying for him and us, or otherwise wishing us well.

I’m too much a realist to believe these thoughts will actually determine Remington’s outcome.  But I am a humanist enough in that I treasure and love every single person who replied with their own way of sharing their thoughts on what was happening.

Remy had a bone marrow test tonight.  I cannot even imagine what that entails.  But he was such a trooper about it that, while under normal circumstances they put the animal under in order to do it, he was so well behaved they just used a heavy sedative. We just called the hospital, because neither one of us is doing ok, and they said he was as alert as can be.  He’s fine for the moment.

“If you don’t hear from us tonight, that’s good news” they told us when we left him. They said that, but his ears were back and he was scared in his open air kennel. It was hard to see him like that, but I knew deep down he was in the best of hands.  And it occurred to me he was in better hands than most humans actually.

I have a new iPad2, a sort of retail therapy. I’ve been checking twitter all night with it and I have a wonderful mixture of messages.  Some people didn’t realize anything was wrong and simply thought I was tweeting about Remy like I always do and tweeted back their own dogs and pictures.  That was nice.  Others followed each tweet and told me that they were thinking of Remy and me and Rochelle.  Tonight I had pre-arranged a dinner for friends of mine in Dallas and they sent me messages too.

So I guess what I am trying to write about is just this interconnected feeling.  I’m scared for Remington.  He’s a simple creature, now surrounded by capable but ultimately unfamiliar surroundings.  And he’s not feeling his best. I love everything about him, his quirks and behaviors and how he’s fit into our family.

And I have this absurd love for the Internet right now.  My friends have sent me messages, and total strangers too.  People who have never met Remington wish him well and health.  And wish me and Rochelle the best in dealing with it. It’s not unlike how the Internet can rise up to the occasion of planet impacting tragedy.

In the end we’re lucky to be even able to afford the luxury of three dogs. In the grand scheme of life’s problems, there are many people on the Earth who would rather have this situation than their own.

I think of Remington’s simple happy grin when he’s outside at the park, his good humor.  And I think that if he had a brain larger than a walnut and more evolutionary developed, he’d say we humans should spend more of our time trying to make each other feel like we’re holding a squirmy gleeful puppy.

So if you’re reading this, and you feel bad that my wonderful boy is feeling sick and sad and alone in a vet hospital, think about all the humans who are in similar circumstances, or worse. Or even all the wonderful pets in similar circumstances.

No matter what befalls Remington Martin, we’ll deal with it.  But there are many out there facing far far worse situations who can’t.  So! 

Tonight I spent a significant amount of money on Remington.  And I commit to spending just as much on a charity of my choice because I am incredibly lucky to be well paid for my job (I’ll add in the price of that iPad).  I ask only that you consider where, and how, you can make a difference in something that is important to you. 

And go fucking do it. Like, now.

If you read one single post about PAX Prime, this is at least that one.

Look I’m not going to bandy about people.  I’ve been busier than a one legged man doing the Price is Right timed “Put everything in the cart and get across the finish line” in a warehouse full of bionic legs.  But I’ve only been that busy because we’re doing some UNPRECEDENTED stuff for PAX Prime coming up in just a few days.

Not only are we doing Halofest, to celebrate the 10th anniversary of THE THE THE TEH HALOZ*, not only will we have booth space showing off Gears of War 3, Kinect games, and other assorted awesomeness, but we’ve got panels galore and a special expo floor project we need YOU to be a part of.

This year at PAX we have an unprecedented** number of panels.  They are all uniformly set to be AWESOME and you should go to every one of them:

PANEL INFORMATION:

@XboxSupport: Customer Support in 140 Characters or Less
Wolfman Theatre
Friday 5:00pm – 6:00pm
What is the Elite Tweet Fleet? Come meet and chat with members of Microsoft’s @XboxSupport Twitter handle about the joys and challenges of providing support for Xbox and Xbox LIVE in less than 140 characters. Members of the Tweet Fleet and Forums Support team will be on hand to answer questions and discuss helping customers through social media.

Major Nelson Radio: Live!
Unicorn Theatre
Friday 6:30pm – 7:30pm
Join Major Nelson, e, lollipop and Stepto as they record the podcast with you, the studio audience. Fun WILL be had. << [EDITOR’S NOTE: Seriously you do not want to miss this. I’m can’t tell you what will happen but it will be something…something wonderful]

We Make Xbox and Xbox LIVE. Ask Us Anything
Unicorn Theatre
Saturday 5:00pm – 6:00pm
What does it take to work on Xbox? How do we determine what cool features to add? What was it like in the early days of creating Kinect? Who has the highest Gamerscore? Ask us anything. We mean it! Join an expert panel moderated by Xbox LIVE’s own Larry "Major Nelson" Hryb as the people who work on creating the Xbox itself, as well as Xbox LIVE, take your questions.  Panel Experts are Eric “e” Neustadter, Stephen “Stepto” Toulouse, Ben Kilgore, Jerry Hook, and Laura “lollip0p” Massey.

Running Xbox LIVE

Unicorn Theatre
Sunday 4:30pm – 5:15pm
Ever wonder what it takes to run a world-wide entertainment service? Join members of the Xbox LIVE operations team as we walk you through the history and present of Xbox LIVE. Learn about the early days of the service, see what it’s like to prepare for a major game launch, get a look inside how teams making the hardware and software have to take into account how it all comes together on Xbox LIVE, and how we take into account safety and enforcement. Hear some great stories over the past 9 years of the service. We promise we won’t get too technical on you too! (PLEASE NOTE: This presentation will not include Q&A as we encourage you to join us for our separate open Q&A session. This session will end slightly early to allow for travel to the Omegathon/PAX closing at 5:30pm)

That’s a lot of panels right?  I GNO.  I especially know since I am helping with most of them.  Which brings me to the next cool piece of news.

We have 50 Xbox and Xbox LIVE employees who have volunteered to work shifts each day wandering the show floor wearing these:

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Front

 

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Back

Our goal?  For you to talk to us.  Now, of course, “Ask me anything” doesn’t mean we can answer *everything* because of our confidentiality agreements.  And we might get our fair number of trolls.  But at PAX it is my belief that people in general not only obey Wheaton’s Law but also are excellent to each other.  So we want to talk to you. If you see someone wearing this shirt, please feel free to go up and speak with them.  Tell them what you like or don’t like on Xbox LIVE and Xbox.  Hate Kinect?  Love Kinect?  Tell us.  Hate Xbox LIVE?  Love Xbox LIVE?  Tell us.  We’re gathering all the comments in order to take it back to Xbox HQ and learn to be even better for you guys.

And finally here is my official schedule for the weekend:

Friday:

Major Nelson Radio LIVE! 6:30-7:30
Halofest VIP party (short speaking segment around 8:30)

Saturday:

We make Xbox and Xbox LIVE, ask us anything!  5:00-6:00

Sunday:

Halofest panel, memories of Halo 11:30-12:30
Running Xbox LIVE 4:30-5:15

My unofficial schedule is that I will be attending the PAX keynote, Wil Wheaton’s Awesome hour on Friday at 2:30, I’ll be at the Saturday night concerts, and on the Expo floor and surrounding areas Sunday. Please stop me and say hello!

So that’s it!  PAX Prime is almost here!

*God damnit Goddammit autocorrect.

**I love using unprecedented twice in a post.

w00tstock 3.0: The Version That Finally Gets It Right

Ok that was a Microsoftism, it’s totally not true of w00tstock.

I’ve spoken of it before but there is an energy backstage at a w00tstock that’s quite unlike anything but a w00tstock.  At any given time there’s a collection of folk not performing that are adding to the geekiness just under the surface where you can’t see it.  Not unlike how just under the surface of a Reese’s peanut butter cup there is something that is kinda like peanut butter but not really but is still AMAZING.

Wait that sounds like I’m saying the people who aren’t performing are the best part of a w00tstock.  That’s totally not true. Perhaps it’s more like the wrapper that encircles the delicious Reese’s peanut butter cup, holding in deliciousness but sometimes the peanut butter cup sticks a bit and leaves some chocolate on the wrapper and you lick that off first before you eat the—

It occurs to me it’s probably becoming clear I’m on a diet/exercise regimen now which might be affecting my metaphors like a ham steak wrapped in bacon.

With my super special amazing secret All Access badge I headed to the back stage of the Balboa theater in San Diego to see my friends. Almost immediately I ran into my fellow w00tstock alumni Marian Call, Len Peralta, and Joel Watson. We hadn’t seen each other in close to 12 hours!  I quickly grabbed Len and took him aside to revisit an idea I had shared with him all those hours ago: Find the worst seat in the house, then ask the person in that seat to take their camera backstage and take photos just for them as a keepsake to make up for the bad seat.

We reached the higher level of the theater and inquired of the nearest usher where the worst seat in the house was.  He pointed up to a far distant location, “Beneath the cliff of the Sound Booth.”  Our eyes tried to focus on the far distant spot, as the usher added, “Be careful.”

High we climbed.  More than once I had to lean on Len as the thin air got to me. The cold bit hard, like a thing that bites hard with a cold that isn’t normally cold but once it bites is really cold, not unlike fire except it was ice. Like ice cream.  specifically Ben and Jerry’s cookie dough ice cream.

My beard was frost covered and I saw my own breath as I choked out to Len, “How much further?”

Len simply replied, “The worst seat is over there, up the aisle.”

At long last we reached the scion of bad seats. She was huddled at the highest point of the theater beneath the Sound Booth overhang. We deployed our strongest charms which mainly consisted of waving our all access badges around and explaining we needed her camera for hijinks backstage.  After regarding us with some mistrust she finally handed the camera over with one stipulation: The my little pony sticker on it had to remain unharmed*.

holds so many backstage secrets.

Camera in hand we trotted backstage to have fun with it and be with our friends. I popped my head into one dressing room and found myself staring at the business end of a very realistic looking black handgun.  I stared carefully down the length of the barrel until my eyes met the holder, Amy Berg. I’d met Amy the previous night and of course admired her work on Leverage and Eureka.  I was not, however, familiar with her proficiency or with her training with handguns or handgun safety.

“Relax,” she said, putting down the gun.  “It’s a metaphor.”

“Oh!” I replied, “Like bacon.  And rich creamery butter.”

She returned to typing away busily at her laptop as she spoke, “I plan to demonstrate the power a writer has to change any narrative at any time.  Make any fictionalized world, even one grounded in a familiar reality, malleable and ultimately fickle. Also Awesome.”  When Amy says “awesome” that’s how it sounds, capitalized and in italics.

I didn’t have time to wonder while she was typing why suddenly I was wearing a matador outfit and plucking rose petals with one hand as I replied, “Any narrative?”

“Any narrative.” She replied, still typing away as I pirouetted around the dressing room in a shocking pink leotard with a diamond encrusted tiara atop my head.

“That sounds so meta” I said as her typing stopped and I returned to my normal self.

You just wait until I kill everyone**,” she said softly to her laptop. I slowly backed out of the room.

’Round the corner were too many awesome people.  Bill Corbett, Kevin Murphy and Michael Nelson of Rifftrax and Mystery Science Theater fame were riffin’ and traxin’ right in the hallway!

Mr. Patrick Rothfuss and Earnest Cline were just standing there.  BEING AWESOME.

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I went to the back room, where the venue had provided us with plenty of crisp, cold Miller Lite, to find Messrs. John Roderick, Jason Finn, and Chris Hardwick. After making my greetings I couldn’t help but notice someone missing.

“Where’s Mike Phirman?” I asked, “Where’s the Human Smile?”

“HE IS HERE” a small but drunken voice came from the corner. I turned, and was shocked at what I saw.

Mike Phirman had been a tall, handsome, virile man.  He was young and smelled of elderberries and cotton candy.  This creature before me was twisted and small, a third of Mike’s size.  Yet he bore his unmistakable handsome facial features, twisted though they were, under a mop of blondish hair. And the voice was familiar if clouded by wine he drank from a great cup.

“Mike!” I said, “What happened—“

“My name is no longer Mike Phirman,” The little man said, “I’ve made peace with what I really am, and no one can take that from me.  From now on I will only be called Phirmion Lannister.  You may call me The Phirmp if you wish.”

“It’s so sad,” Hardwick said, “The burden of being the human smile was too much.  Well that and he twisted himself into a ball of sour hate when the remaining Jackson brothers contacted him thinking Clear the Floor was a serious song about an incompetent but over controlling creative influence and they wanted to cover it as a posthumous rebuke of Michael.”

“My friend has the right of it,” the Phirmp shouted, “Never forget what you really are! I’m no human smile.  I’m the human poker face.”

Amy peeked her head into the room. “Mike you’re on next.”

“Oh really,” Phirmion said, “How’s about I don’t go on at all eh?”

“I don’t have time for this,” Amy said as she tapped quickly on her keyboard.

Suddenly Mike Phirman, as he was, stood before us. He glowed white with pure awesomeness and now smelling of orange Starburst candy and freshly baked cookies. He took a deep breath and levitated six inches off the ground for a second.

“Ah yes.” he said, “I’m on then.”

The entire night was amazing, from the traditional w00tstock performances of Paul and Storm and Adam Savage and Wil Wheaton, to the special 3.0 guests, to the videos that played.  And backstage and offstage we took pictures.

Oh yeah all those backstage photos?  You should see them too.

There are no more w00tstocks this year I am sad to say.  However, something…wonderful is being planned for 2012.  And I think you should go have a say in it.

* That was a real thing she said.

** Amy didn’t really kill everyone.  That night anyway.